Grant to Advance Autism Research Awarded to Children’s Specialized Hospital

November 17, 2016

Mountainside, NJ:  Children’s Specialized Hospital received a $400,000 grant from the Governor’s Council for Medical Research and Treatment of Autism to ensure patients with Autism Spectrum Disorder (ASD) receive seamless transition into adult healthcare.

The Autism Medical Home Transition Collaborative: Partnering Pediatric and Adult Care grant will allow Children’s Specialized to develop a care tool that will provide adolescents and young adults with ASD and their families the tools and coordination needed to transition from pediatric care to adult care that many healthcare facilities are lacking.

“This project focuses on creating an optimal transition care plan to ensure we best prepare our families with the tools and models they need for a successful transition to adult care,” said Matthew B. McDonald III, M.D., Chief of Special Needs Pediatrics at Children’s Specialized Hospital. “Transition affects many areas of life including health, education and training, employment, living situation, and possibly guardianship. Also other areas of daily life could prove challenging for families, so we want to learn how to best help.”

This grant, which was awarded on July 1, 2016, will provide funding through June 2018. In year one, experts at Children’s Specialized will create an evidence-based ASD transition care tool. During the second year, the care tool will be implemented into the Special Needs Primary Care Autism Medical Home, and then disseminated to local community healthcare providers.

“When children are growing up they typically have a pediatrician, but once they reach adulthood, it is hard to find a medical provider to take on this role for young adults with autism and other medical needs,” said McDonald. This transition tool will help alleviate this challenge by ensuring that smooth linkages are made.

This is one of two grants that have been awarded to Children’s Specialized in just two years from the New Jersey Governors Council for Medical Research and Treatment of Autism. In 2015, the Autism Needs Medical Home grant provided $200,000 a year for two years to allow the Special Needs Primary Care practice to research optimal care coordination models within a medical home for children with ASD. Children’s Specialized Hospital Special Needs Primary Care is recognized by the National Committee for Quality Assurance as a Patient-Centered Medical Home.

Children’s Specialized is the region’s largest provider of services for children with ASD. With a focus on early intervention and treatment, it is one of the few programs in New Jersey that provides coordinated, multidisciplinary care for children, adolescents and their families. With a focus on family-centered care, Children’s Specialized is constantly finding new ways to meet the ever-changing needs of its patients and families.

Children’s Specialized Hospital is the nation’s leading provider of inpatient and outpatient care for children from birth to 21 years of age facing special health challenges — from chronic illnesses and complex physical disabilities like brain and spinal cord injuries, to developmental and behavioral issues like autism and mental health. At thirteen different New Jersey locations, our pediatric specialists partner with families to make our many innovative therapies and medical treatments more personalized and effective...so children can achieve more of their goals.  To help, or find more information: call 888-CHILDRENS; visit www.childrens-specialized.org; Facebook: www.facebook.com/childrensspecialized; Twitter: www.twitter.com/childrensspecnj; YouTube: www.youtube.com/cshnj; LinkedIn: www.linkedin.com/company/children's-specialized-hospital

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