Children's Specialized Hospital Programs and Services
Paparella Family To Represent Children's Specialized Hospital at National Family Advocacy Day in Washington DC
Families to Meet with Congressional Leaders
July 23, 2012 - Children's Specialized Hospital

As federal legislators continue to grapple over the best way to bring better health care to all Americans, children’s health care hangs in the balance. That’s why a local Bayville family is taking their story to Washington, D.C. this month to ask Congress to take action to protect care for children in the face of proposed cuts to national health care programs kids rely on.  
 
Julia, Mia and their family join nearly 30 other child patients and their families traveling to the nation’s capital to help bring to life the importance of adequate funding for pediatric care as part of the Children’s Hospital Association’s Family Advocacy Day, taking place July 23-25, 2012. The event includes one-on-one congressional visits, a congressional luncheon, a tour of Washington and a celebratory dinner to honor the child patients known as Family Advocacy Day “All Stars.”
 
Julia and Mia Paparella Family Advocacy Day 2012The Paparella family knows firsthand the value of quality pediatric care.  Both Julia and Mia receive specialty pediatric care from Children’s Specialized Hospital. Julia was diagnosed failure to thrive because of an undiagnosed food allergy and Mia has a sensory processing disorder. 
 
“We feel incredibly blessed for the specialized care and attention our daughters receive from the physicians and therapists at Children’s Specialized Hospital,” said Gina Paparella. “Timely access to pediatricians and specialists for all children is critical. We’re taking our story to Washington to help our leaders recognize the need to protect and preserve quality health care for kids all across the country.”
 
Experts agree that several proposals have the potential to harm children’s access to care.
·         Children’s Hospitals Graduate Medical Education (CHGME), a national program solely devoted to helping children’s hospitals train pediatricians and pediatric specialists, supports the training and development of nearly half of all pediatricians and pediatric specialists practicing in the U.S. Unfortunately, CHGME funding is far below the support needed to close the gap between demand for care and the supply of pediatric specialists. The result is a national shortage of pediatric specialists.
·         Medicaid, a federal-state program that provides health coverage to one in three children faces proposals that would slash program funding. President Obama’s fiscal year 2013 budget proposes Medicaid cuts of $56 billion over a 10-year period. The House fiscal year 2013 budget proposes capping the amounts of funding states receive for Medicaid, which could negatively impact children’s health care.
 
 
“Because kids get sick, and some kids get very sick, timely access to well-trained pediatricians and pediatric specialists should be a priority for Congress,” said Amy B. Mansue president and CEO of Children’s Specialized Hospital. “Children are not small adults. They are constantly growing and developing, and need specially trained health care providers who can meet their needs. To ensure they get the best care to grow and succeed child health programs should be protected, not cut.”
 
The Children’s Hospital Association will release findings from a survey of children’s hospitals to better understand the impact of pediatric specialist shortages on children’s ability to access timely medical care. The release will occur during Family Advocacy Day (July 23–25).
 
Children’s Specialized Hospital is the preeminent provider of rehabilitation services for children with special needs. The hospital serves children affected by brain injury, spinal cord injury, premature birth, autism, developmental delays, and life-changing illnesses. Children’s Specialized Hospital has nine sites in New Jersey and treats 19,000 children each year, making it the largest pediatric rehabilitation system of its kind in the nation. Services include outpatient services, acute rehabilitation, and long-term care through its sites in Bayonne, Clifton, Mountainside, Toms River, Fanwood, Hamilton, New Brunswick and Roselle Park as well as outreach programs in many communities.  Children's Specialized Hospital is a proud member of the Children's Miracle Network Hospitals. Children’s Specialized Hospital Foundation supports the programs and services of the hospital. The Foundation is ranked among the top six pediatric hospital foundations in the country. To help, or find more information: visit www.childrens-specialized.org; find us on Facebook, or follow us on Twitter @ChildrensSpecNJ.
 
About the Children’s Hospital Association
The Children’s Hospital Association advances child health through innovation in the quality, cost and delivery of care. Representing more than 220 children’s hospitals, the Association is the voice of children’s hospitals nationally. The Association advances public policy enabling hospitals to better serve children, and is the premier resource for pediatric data and analytics driving improved clinical and operational performance of member hospitals. Formed in 2011, the Association brings together the strengths and talents of three organizations: Child Health Corporation of America (CHCA), National Association of Children’s Hospitals and Related Institutions (NACHRI) and National Association of Children’s Hospitals (N.A.C.H.).
 
For more information on Family Advocacy Day, visit www.childrenshospitals.net or follow the families on Facebook at http://www.facebook.com/childrenshospitals or Twitter, @speaknowforkids, #FAD12.
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